The EPIS Community is calling on multiple stakeholders to take action to ensure patients have a voice in digital development and access to digital solutions that can improve their lives.
Establish a dialogue with patient communities, to understand their biggest unmet needs and how technologies could be used to address these needs.
Involve patients from the start and throughout the development process, where patients are the end-user or beneficiary. Involve other end users, like healthcare professionals, if they are also going to use or recommend the digital health solution to patients.
Ensure that issues with accessibility or understanding are considered early in digital health solution development.
Be curious about the potential of digital health solutions to help meet patients’ needs and open to using technologies that have been shown to help improve patients’ health.
Engage with other stakeholders during development of digital health solutions, so clinical aspects are considered during the development process.
Embrace the use of electronic health records (EHR) in daily practice and push to break down organizational and technical barriers to the optimal implementation of EHR in health services across Europe.
Explore ways digital health solutions can be deployed to better capture the patient experience of a medicine and the burden of living with a given condition.
Involve patients in the end-to-end development of digital health solutions.
Continue to connect the dots between the data that companies collect from various sources, generating insights that can help identify innovative solutions to patient problems.
Support the uptake of digital health solutions that have been shown to have the greatest impact on patients’ lives and wellbeing.
Reconsider policies relating to medical device assessment and recommendation, to decrease the time it takes for digital health solutions to come to market, so that when they do, they are current and relevant.
Change the way that healthcare is financed in order to, for example, stimulate the more widespread use of EHR.
Address patients’ concerns about data-sharing without making it too difficult for patients to share their data.
Join forces with other interested patient advocates to develop common solutions to shared problems associated with the use of digital health solutions.
Increase knowledge of digitalization in healthcare to effectively contribute to digital health solution development.
Seek out opportunities to engage with all stakeholders in the digital ecosystem, so that they better understand the patient perspective and will be more likely to engage early and systematically with patients in the development of digital health solutions.
How do we involve all patients?
What do we need to do to ensure that patients become the most important voice in the decision-making process regarding digital health solutions and data privacy?
How do we create a robust governance framework that includes the participation of different types of patients in the development of technologies so that tools created are fit for purpose?
>400 Patient advocates
18 European hubs
2 way connectivity and live-streaming
Presentation, panel discussion, break-outs and live-voting