Resources

infographic discussing the value of health data for society and individuals, highlighting health data are key for improving knowledge and quality of life.

infographic discussing how issues around the future of health data sharing may be overcome, flagging the importance of accountability, communication, informed consent and patient advocacy in this.

infographic discussing practical examples of how patient organisations have been involved in data generation and top tips for how to take action by using and applying health data.

outlining how you can engage with local stakeholders to support the implementation of the EPIS recommendations at a local level through local engagement

a visual representation of the insightful discussion that took place at the EPIS 2020 post-summit webinar on how to make the recommendations discussed during the EPIS 2020 Summit a reality

a visual representation of the insightful discussion that took place at the EPIS 2020 Summit on ‘Post COVID-19 - a look to the future of digital engagement’

a visual representation of the insightful discussion that took place at the second EPIS 2020 pre-webinar on ‘Using artificial intelligence to transform patients’ experience of healthcare’

a visual representation of the insightful discussion that took place at the first EPIS 2020 pre-webinar on ‘How digital engagement has transformed patients’ world’

outlining recommendations developed by the EPIS 2020 community during breakout sessions, aiming to ensure that patients continue to benefit from digital engagement opportunities

summarising the most positive and negative aspects of digital engagement as voted on by patient representatives at the EPIS 2020 Summit

Explore the digital engagement practices of patient organisations across Europe during COVID-19

outlines concrete actions for multiple stakeholder groups to make the 2018 recommendations a reality

summarises the key factors that have prevented patients truly benefitting from digital health solutions and gives recommendations to address these

summarising discussions from EPIS 2017, exploring how digital technologies are revolutionising healthcare and ways to ensure patients can have a more impactful voice in healthcare decision-making

summarising discussions from the first ever EPIS event

to help you facilitate your own meeting

provides definitions of important terms related to digital health